Project Leads: Professor Chloe Orkin, Dr Sara Paparini, Ms Maryam Khan
The community response was critical to limiting the spread of mpox within sexual networks. Working in partnerships with community organisations to understand their perspectives was vital to tailor interventions to what the community wanted and needed.
Laboratory features of mpox have differed in the recent outbreak. There are many unknowns around re-infection and the levels of immunity in people with natural immunity and in response to the small pox vaccine that was deployed during the 2022/23 pandemic.
SHARE-NET author group, NEJM 2022
SHARE will collaborate with scientists at the World Health Organisation and in Porten Down to deliver social science research and basic science research. To achieve this, we are:
Publications
Storer, D., Holt, M., Paparini, S., Haire, B., Cornelisse, V. J., MacGibbon, J., Broady, T. R., Lockwood, T., Delpech, V., McNulty, A., & Smith, A. K. J. (2024). Informed, but uncertain: Managing transmission risk and isolation in the 2022 mpox outbreak among gay and bisexual men in Australia. Culture, Health & Sexuality, 1–16. https://doi.org/10.1080/13691058.2024.2346540
Smith, A. K. J., Storer, D., Lancaster, K., Haire, B., Newman, C. E., Paparini, S., MacGibbon, J., Cornelisse, V. J., Broady, T. R., Lockwood, T., McNulty, A., Delpech, V., & Holt, M. (2024). Mpox Illness Narratives: Stigmatising Care and Recovery During and After an Emergency Outbreak. Qualitative Health Research, 10497323241234482. https://doi.org/10.1177/10497323241234482
Hayes, R., Dakin, F., Smuk, M., Paparini, S., Apea, V., Dewsnap, C., Waters, L., Anderson, J., Orkin, C.M., 2024. Cross-sectional survey of sexual health professionals’ experiences and perceptions of the 2022 mpox outbreak in the UK. BMJ Open 14, e080250. Https://doi.org/10.1136/bmjopen-2023-080250
Wan, Y.I., Smuk, M., Pearse, R.M., Paparini, S., Apea, V.J., Orkin, C.M. 2023. Clinical research in the NHS: a cross-sectional study of research engagement during the monkeypox pandemic. BMJ Leader 7, e000812. Https://doi.org/10.1136/leader-2023-000812
Paparini, S., Whitacre, R., Smuk, M., Thornhill, J., Mwendera, C., Strachan, S., Nutland, W., Orkin, C., 2023. Public understanding and awareness of and response to monkeypox virus outbreak: A cross-sectional survey of the most affected communities in the United Kingdom during the 2022 public health emergency. HIV Medicine 24, 544–557. Https://doi.org/10.1111/hiv.13430
Orkin, C., Paparini, S., Thornhill, J.P., Apea, V., Mwendera, C.A., Smuk, M., Hayes, R., Anderson, J., 2023. SHARING to create knowledge in a crisis. BMJ Leader 7, e000810. Https://doi.org/10.1136/leader-2023-000810
Conferences
Storer, D., Holt, M., Paparini, S., Haire, B., MacGibbon, J., Cornelisse, V., Broady, T., Lockwood, T., Delpech, V., McNulty, A., Bourne, A., Heath-Paynter, D., Lancaster, K., Newman, C., Rule, J., Smith, A. K J. ‘Informed, but uncertain: managing transmission risk and isolation in the 2022 mpox outbreak among gay and bisexual men in Australia.’ Oral abstract accepted for the 25th International Union Against Sexually Transmitted Infections (IUSTI) World Congress 2024, Sydney, September 2024.
Smith, A. K J., Storer, D., Lancaster, K., Cornelisse, V., MacGibbon, J., Haire, B., Newman, C., Delpech, V., Paparini, S., Rule, J., McNulty, A., Bourne, A., Broady, T., Heath-Paynter, D., Holt, M. (2023). ‘“It was just the most horrible experience of my life” Understanding social and care experiences during and after mpox illness: Qualitative accounts of people diagnosed and close contacts in Australia.’ Australasian Sexual and Reproductive Health (ASRH) Conference Oral Presentation, 20th September 2023.
Hayes R, Smith AKJ, Apea V, Orkin CM, Paparini S. Outbreak distress: characterising moral distress amongst international healthcare workers responding to mpox in 2022. Oral presentation. BSA Medical Sociology Conference 2023, 13-15 September; Brighton, United Kingdom.
Smith, A. K J., Storer, D., Lancaster, K., Cornelisse, V., MacGibbon, J., Haire, B., Newman, C., Delpech, V., Paparini, S., Rule, J., McNulty, A., Bourne, A., Broady, T., Paynter, H., Holt, M. (2023). ‘“It was just the most horrible experience of my life” Understanding social and care experiences during and after mpox illness: Qualitative accounts of people diagnosed and close contacts in Australia.’ International AIDS Society (IAS) 2023 Conference Latebreaker Oral Presentation, 25th July 2023. https://doi.org/10.1002/jia2.26134
S Paparini, J Thornhill, C Mwendera, S Strachan, R Whitacre, W Nutland, CM Orkin. O41A Perceptions and understandings of media and public health messaging about the monkeypox outbreak in the UK: findings from a rapid response, co-produced survey. Oral presentation. HIV Glasgow 2022, 23–26 October; Glasgow, United Kingdom.
S Paparini, S Strachan, J Thornhill, W Nutland, C Mwendera, CM Orkin. O41B Including women in the public health response to the monkeypox (MPXV) outbreak in the UK: findings from a rapid response, co-produced survey. Oral presentation. HIV Glasgow 2022, 23–26 October; Glasgow, United Kingdom.
If you’d like more information about research theme four, please contact the project leads:
Professor Chloe Orkin
Email c.m.orkin@qmul.ac.uk
Dr Sara Paparini
Email s.paparini@qmul.ac.uk
Ms Maryam Khan
Email maryam.khan@qmul.ac.uk