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Achieving Health Equity Through Community Participation And Agenda Setting

Project Leads: Dr Vanessa Apea, Dr Sara Paparini, Professor Chris Griffiths, Professor Jane Anderson


Many communities in East London and beyond experience socio-economic deprivation and health inequities.

The SHARE team is working in partnership with local people to develop collective knowledge about COVID-19 pandemic recovery, HIV, mpox and sexual health. This approach will provide rich understanding of the health needs of local people and help find ways towards health equity whilst ensuring no one is left behind.

Our community board will underpin the SHARE research agenda. We will work with local people to hear and understand their personal experiences and advise on the direction that research should take. This collaboration will ensure that SHARE’s work is always relevant to the communities we serve and that our recommendations have the greatest impact.”

Dr Vanessa Apea, Consultant Physician, Barts Health NHS Trust



Lived experience will be at the heart of the SHARE research collaborative. This theme will include:
  • Using an adapted version of the James Lind Alliance Priority Setting Partnerships, which enables clinicians, patients, carers and other people to work together on health research.
  • Establishing a remunerated local community advisory board to provide input, define and challenge the design, development, implementation, analysis and dissemination of our research.
  • Working with existing networks and projects with intersecting interests and skills (the IDEAL study).
  • Recruiting local people living with HIV to be part of our research – having a deep understanding of a range of lived experience will inform interventions, help to improve outcomes and provide relevant insights for other medical conditions.


Apea V. Closing the gap on health inequalities: learning from HIV care. British Journal of Healthcare Management. 2020 Oct 2;26(10):1-4. doi.org/10.12968/bjhc.2020.0133

Apea VJ, Wan YI, Dhairyawan R, Puthucheary ZA, Pearse RM, Orkin CM, Prowle JR. Ethnicity and outcomes in patients hospitalised with COVID-19 infection in East London: an observational cohort study. BMJ Open. 2021 Jan 17;11(1):e042140. doi: 10.1136/bmjopen-2020-042140. PMID: 33455936; PMCID: PMC7813387

Glendinning E, Spiers J, Smith JA, Anderson J, Campbell LJ, Cooper V, Horne R; SUPA Group. A Qualitative Study to Identify Perceptual Barriers to Antiretroviral Therapy (ART) Uptake and Adherence in HIV Positive People from UK Black African and Caribbean Communities. AIDS Behav. 2019 Sep;23(9):2514-2521. doi: 10.1007/s10461-019-02670-x. PMID: 31520239; PMCID: PMC6766469

Burch LS, Smith CJ, Anderson J, Sherr L, Rodger AJ, O’Connell R, Geretti AM, Gilson R, Fisher M, Elford J, Jones M, Collins S, Azad Y, Phillips AN, Speakman A, Johnson MA, Lampe FC. Socioeconomic status and treatment outcomes for individuals with HIV on antiretroviral treatment in the UK: cross-sectional and longitudinal analyses. Lancet Public Health. 2016 Nov;1(1):e26-e36. doi: 10.1016/S2468-2667(16)30002-0. PMID: 28299369; PMCID: PMC5341147


Spiers J, Smith JA, Poliquin E, Anderson J, Horne R. The Experience of Antiretroviral Treatment for Black West African Women who are HIV Positive and Living in London: An Interpretative Phenomenological Analysis. AIDS Behav. 2016 Sep;20(9):2151-63. doi: 10.1007/s10461-015-1274-9. PMID: 26767539

Get in touch

If you’d like more information about research theme four, please contact the project leads:

Dr Vanessa Apea
Email v.apea@nhs.net

Dr Sara Paparini
Email s.paparini@qmul.ac.uk

Professor Chris Griffiths
Email c.j.griffiths@qmul.ac.uk

Professor Jane Anderson
Email janderson@nhs.net