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PrEP-Position

19/06/26

The “PrEP-Position” Study –  a mixed-methods, community-co-produced study to identify the barriers, facilitators, and motivations that influence PrEP access, use and preferences among populations underserved by HIV prevention

PrEP-Position is a study devised and delivered by the SHARE Collaborative exploring experience, knowledge and access to PrEP amongst underserved populations. This study also seeks to understand preferences for treatment modality (i.e., oral pill, or long-acting injectables) and delivery setting (i.e., online, GPs, pharmacies). This study was co-produced with our community partners, the Sophia Forum, and our 9 steering group members. More details on our methods can be found in our protocol.

Community Statements:

Together with our community partners, we co-developed community statements to drive change in PrEP is delivered in the UK. These statements serve as community-informed and situated recommendations for key interest holders, such as activists, community organisations, policymakers, healthcare providers and researchers working in HIV prevention. The statements are intended to support advocacy, inform policy and practice, and drive meaningful improvements in HIV prevention and PrEP services.

To showcase these recommendations, we co-produced the PrEP-Position Community Statements Report. The report outlines the process used to develop the statements. The statements and report are grounded in initial findings from the PrEP-Position study and rooted in the lived experiences and reflections from steering group members, study participants and the recommendations themselves.

The statements embody a synthesis of diverse perspectives from communities with varied experiences and needs and should therefore be regarded as reflecting this diversity, rather than being representative of any single population or demographic group. The report can be accessed here.

Key themes:

  • Changing the conversation – moving away from risk when addressing and adapting the language we use when talking about PrEP and HIV
  • Improving how you access care – expanding treatment options and delivery settings to meet people’s needs
  • Community leadership and peer support – funding and supporting community-led initiatives
  • Understanding and improving health systems – addressing systematic barriers to care and advocating for long-acting treatments

This work supplements the data-driven academic outputs and contributes to meaningful and lasting improvements in PrEP care, HIV prevention, and health equity across the UK.

For any questions about the study, contact prep-position@qmul.ac.uk. Follow our social media accounts for regular updates about the study.